Beyond Strong. The Thing Is, Life Goes On.

Beyond Strong. The Thing Is, Life Goes On.

Meet Jazz from “Just Wingin’ It”.  A woman I am proud to have met.  Hers is a story of survival.  A story of why you should trust yourself and stand up for what you know, in your heart of hearts, is right. Even when all the experts say no! Jazz is the ultimate warrior, a mum and a friend you’d want on your side.  But the pain and trauma that this lady lives with each day is what makes her special.  Make no mistake, no mama would want to live her pain.  Yet, she gets up and moves forward, spreading the love. She teaches us how to stay true to ourselves, that it’s okay to not be okay and sometimes a big belly laugh is just what the doctor ordered. I remember the day, ten years ago. Splashed across the news was the reports of the most horrific accident you could be faced with as a parent.  Jazz’s children crushed out the front of their home as they came home from school, by the gate and brick pillar that was not reinforced properly. I remember the feeling of sickness that riddled my body. The tears that welled in my eyes. The hurt in my heart for that Mama and the horror story she was now living.  None of us knew the half of it as Jazz explains below, nor did I realise that ten years down the track that our paths would cross and that we would have the opportunity to strike up a friendship with many experiences and passions in common. Jazz is a woman to be admired. ...
As A Mum, This Is Something I Will Be Forever Proud Of

As A Mum, This Is Something I Will Be Forever Proud Of

Image by Mantrabond Update #3: Day 12, 8 July 2018 Ohhh, that feeling when you wake up every morning to an alarm reminding you it’s time for ORKAMBI! Seriously! I have one cool upbeat tune that plays everytime ‘O’ is due. It reminds me every morning of the path we’ve taken to now and of the amazing little PINK PILLS that are giving us hope… that and the undeniable fact that my boy has a fighting chance! GRATITUDE If nothing else of value has been achieved in my life, I know THIS is something I will forever be proud of. I get emotional every time I think about it. It has been some time since I did an update on Matthew’s progress, so here it is!!! You know the old saying, “no news is good news”… well, that is exactly how it is. Matthew is doing incredibly well. Every morning and night he takes those pills. Within the hour we know they have activated because he starts coughing. We do the physio (and he lets me help – YIPPEEE), sometimes there has been very little that has moved but most times like today, Matthew shifts heaps. Mostly it is dark and I do wonder if he did physio all day if it would keep shifting?! Matt is reporting that he is starting to feel better but it is very difficult for him to articulate what that means. I see a kid who is getting up earlier and sleeping less. A kid who is facing some of his fears and making more of an effort to push through those difficult...
Harsh lessons for my chronically ill son

Harsh lessons for my chronically ill son

It is no surprise to me that my son who is now approaching 15, over the past few months, has been resisting his medications, treatments and physiotherapy that keep him well and maintain his baseline health for Cystic Fibrosis. What is surprising is that it has taken until nearly 15 years of age for him to do it.  I figure that some of the social delays he has, have contributed to this.  But he is most certainly in his teens, physically and mentally.  He is incredibly strong willed and stubborn.  When he has made up his mind about something, there is not a whole lot you can do to change his perspective. When my boys were young and as I was bringing them up, I tried hard to teach them to listen to what their body was telling them and to adjust their behaviour accordingly.  Sore tummies or headaches, and anything in between, always followed with a discussion about what led up to the event or the symptom.  Trying to identify the trigger. What I was trying to do was gift them self-awareness.  I knew from being a teen myself and reading literature about teens with Cystic Fibrosis (and chronic illness in general) that the teen years were going to be tough.  Especially for Matthew dealing with CF. My theory was to teach them to understand that the things we do, the food we eat, the drinks we consume and the environment in which we live can significantly affect how we feel and how our body performs.  By doing this, I hoped, no I trusted that they would grow...
Nourish Your Mind & Body in 5 Ways

Nourish Your Mind & Body in 5 Ways

To keep us at our best, we know how important it is to nourish our mind and body! We also know that in order to operate at an optimum level and perform everyday, we need to ditch the sweet sugary snacks, processed foods and reduce stimulants such as coffee.  These cause issues with your blood sugar levels, contribute to dehydration, will give you a ‘foggy head’ and will lead to adrenal fatigue (stress hormone).  This is not where we want to be.  I for one don’t want to be concerned about my health when I need to take care of the one’s I love. Check out my 5 strategies to help you nourish your mind and body below:   Hydration Consuming at least 2 litres of water per day is essential for normal bodily functions. Lemon squeezed in a glass of water first thing in the morning is a great way to wake up, is a boost to your immune system and your liver will love you for it. Fail to consume enough and your body will not be able to function properly.   Whole Foods It is no secret that when it comes to food, fresh and colourful is best. Vitamins/minerals, proteins, fats & complex carbohydrates are essential in our diet. Processed food has excess sugar & chemicals will negatively affect our health. These foods really do give us an abundance of energy, nourish every organ and contribute to clearer thinking and better overall performance.  Think fruits, vegetables (green leafy’s), complex carbohydrates, lean protein & good fats.  Flavour with beautiful natural herbs and spices and you are on to a...
Emotions for a child – a poem

Emotions for a child – a poem

In the days and weeks that followed my son’s diagnosis, no one could take away our pain or our grief. There isn’t really much that people can say or do to change it? You just have to ride the wave. A few weeks after the shock had settled I received a card and letter from my aunty. She, like all of our family, was hurting deeply for us.  She herself was hurting.  What does the future hold for our darling boy?  Her letter expresse her sorrow and grief.  She penned a beautiful poem. The words flowed from one parent to another. Words that simply could not be said.  Words that strike a chord deep inside. Words that are so special, so precious that they encapsulate every emotion we were feeling. A message I will never forget and always find comfort in.  She gave me permission to feel, feel everything. The parting words from her said simply: “The love just comes easy, you don’t have to try. Let little Matthew help you just live life and enjoy. He is wise beyond his years and will guide the way” Fourteen years later and it is still raw as ever.   Emotions of a Child is dedicated to all people affected by a life changing “diagnosis”.  I hope you find it as special as I do.     EMOTIONS FOR A CHILD by Kerri Trengove Sheer joy and wonder at the miracle of such a perfect, beautiful little bundle Shock and disbelief That your perfect little child has been given a ‘diagnosis’ “there must be a mistake” “I’m going to go to sleep...