The most beautiful birthday gift!

The most beautiful birthday gift!

As parents we all feel a deep sense of pride, a heart overflowing with love and an abundance of special memories, don’t we?  We wonder where the years have gone and how in the heck they have gone so fast.  We smile.  For me, each year on the 10th of January, I have all of the above plus a very strong and very deep sense of gratitude. Today is my son’s birthday.  Matthew is 14 years old and every year on his birthday, I feel like it is my celebration, for I was the one gifted someone so special.   At 5 weeks old Matthew was diagnosed with the chronic life threatening disease, Cystic Fibrosis (CF).  CF predominantly affects the respiratory (lungs) and digestive systems, and produces a thick glue-like mucous. The mucous is an ideal environment for bacteria and infection to form, causes an in ability to digest fats and is the major factor in the resulting decline in health. At the time we were told his life expectancy would be 28 years.  28 years old!?!?!?!?! I beg your pardon?  How disgusting, that based on statistics alone, someone I don’t even know gets to put a timeline on my child’s life and to make that the focal point of his existence. This was my beautiful perfect little boy and here I was being asked to face the end of his life when his life was just beginning.  He was perfect!  All I could do was hold him.   For any parent, to have a diagnosis with a timeline put on your child’s life cuts to the absolute core....