A day in the life of a carer . . .

A day in the life of a carer . . .

She sits down to her computer at 7.45 pm, without knowing how long she has, she gets straight to work.  It seems like a day where she has achieved nothing in her “busy-ness”. Feeling satisfied yet exhausted, she slipped into bed at 12.30 am of the same morning, after administering the third and final intravenous (IV) antibiotic for the day to her chronically ill son.  Up until midnight, she had been supporting a couple of vulnerable carers online going through their own tough times. She woke briefly at 5.20 and ensured her husband had what he needed for his day at work. She dozed back off for a few more minutes of sleep. This is a typical day of a carer.  A carer, who at the moment, has a more intensive care regime for her son, who is undergoing intensive IV antibiotic and physiotherapy treatment.  He has Cystic Fibrosis.  They are two weeks into the treatment of a potential four week regime. A week ago they were fortunate to have the choice to take the boy home and administer this treatment from there. The family can then remain together. Hospital treatment means the family are separated for long periods at a time. Beep, beep, beep – the piercing sound of the alarm startles her yet just as swiftly it is put onto snooze – she steals another 10 more valuable minutes.  Eventually she rises just before 7 am and tries to wake the children on her way down to the kitchen.  The kettle boils in the background as she gets to work on preparing the IV medications. Today her youngest child is focussed...